So I went to visit my Dermatologist again yesterday (Private). Wasn’t looking forward to it and had to strategist before going in. Took a selection of images extracted from my body from the last couple of days to show him. Also took in some samples (which he didn’t ask to see).
I was stressed, last time I went to see him it wasn’t a good experience – conversation went like this:
Doc ‘I cannot see these objects in the particular part of my ear from which you claim you have extracted’
Me ‘They are buried in the skin or under – It literally can take hours to extract these objects;
Doc ‘But I can’t see them ‘
Me: ‘I can extract them if you wait – but its going to take some time’
Doc: ‘OK – Go on then’
Me: (Great! success, I can move this along) – start to try to massage out the objects, Doctor starts to look distressed at what I’m doing. It is very very uncomfortable to watch.
Doc: <<2-5 mins in whilst talking>> I haven’t got time for this – I need to see other patients
Me: I said this is hard, its takes time – I can wait outside and work on this while you see other patients
Doc: ‘No, how do I know you aren’t just creating this objects and planting them’
Why couldn’t he wait ? How could he think that I would be possibly able to make objects that I cannot see with the naked eye ? ………. It was then I realised that he was being completely unreasonable and he didn’t really want me to do this, he wanted me to go away. It was demoralising and difficult to deal with – my experience with people is that its completely pointless trying to reason with someone that wants to be unreasonable. Particularly someone that is intelligent.
So why was I going back? I had to get that straight in my head ..
- I was desperate – he had context and I wouldn’t have to spend 10-15 mins of time giving background and answering questions
- I might have caught him on a bad day, but hopefully his professionalism might kick in and I may be able to make some sort of progress towards some sort of acknowledgement
- If someone ever came to him with a similar condition, it would help them – much more harder to ignore. Think of the wider andgreater good, well thats what I was telling myself.
So the meeting went like this ….
I showed him what I thought were reasonable compelling pictures of something that is clearly not right.
He kept going back to ‘dermatitis skin condition’ and it looks like as a result of this your skin is over sensitised and you are feeling stuff that isn’t happening.
So I feel movement on parts of my body, then I get slight lumps and then I get these extremely large and sore white spots … and also, if I massage oil into those lumps I remove these objects.
Yes – that is a reaction of your skin to dermatitis
So what are these objects with black things in?
‘Looks like material, could be microfibre’
‘Buried in the skin, and encased in these really hard objects that I’m extracting?’
‘Looks like material to me – but I don’t know exactly, haven’t you had that referral to the Tropical Disease Center’
….. So I had a think about this conversation. Firstly – I think what I’ve found with a lot of doctors is there is what I could only describe as ‘Lazy thinking’. They are going for the explanation, however circumspect as the easiest ‘Get out Jail, get rid of them ‘ card.
There is another layer I suspect. They cannot admit ‘There is something wrong with you, but we don’t know what it is’ – because legally that will leave them open, they may have a duty of care to continue investigating it, identifying it and then closing it down. You will become their problem. So the way he was closing this down was ‘I think it is X, but that looks like it need investigation and we are going to pass you onto Y dept’. They have, on paper solved what the underlying issue is and can then pass it on.
Doc ‘You might not like my opinion of what this is’
Me: ‘I don’t, but at the same time I don’t care if I like it or not, I simply want a course of action that will resolve it – and what you have recommended isn’t resolving it’
Doc: ‘You may have to learn to live with this, plenty of people get stuff and then have to learn to live with it’
Me: ‘Understood, but at the moment we haven’t even identified what I have – we don’t know what I’ve got and if we could move towards even acknowledging and identifying what I’ve got then we can start to progress this’
He was rather irritated that I had not yet been able to see the Tropical Disease Center (Still waiting for an appointment – and the NHS is broken in the UK) – and we had a constructive conversation about that.
Below is the selection of recent images that I showed him. In isolation they look like they could be ‘anything’ – but with the context of my described condition, and the consistency of objects being extracted, I thought this might, at a minimum be considered ‘not right’ and warrenting further investigation. Silly me.
However, this is progress – hard physical evidence and photos are a lot less subjective and much more awkward to dismiss. It’s just a sorry state of affairs that it’s taking this much effort to convince doctors I have something, god knows how many other poor soul are out there are being dismissed as psychotic.
So I left, still with this affliction which has affecting every aspect of my life with no real help and a slight acknowledgment that there is something going on. I would be totally up the creak if I didn’t have these images and objects.
Jason
Image Notes:
- That is my fingerprint in the background.
- All objects are recent and have been extracted over the last 2 weeks
- I simply cannot see some of these objects – however I can feel them, ROCK HARD.
- ‘Hair’ included for a sense of scale and also to help counter the lazy argument ‘That could be Hair embedded in those objects’ – mental gymnastics.
- This is a small selection of what I’m taking out of my skin where I am feeling movement, there are literally 100’s of these things. Imaging them become’s pointless as they are similar.
- Average Distance between fingerprint ridges is 0.15mm for a sense of scale.
My MiteMare 
Leave a comment