A list of my symptoms…. My ear was particularly problematic and infested, took me a long time to actually work this out and I think these things particularly like cartilage, they seem to be able to bury much deeper into these areas.
For context, I don’t take drugs, I was heavily into fitness – I can bore to death anyone on health and fitness (I’m obsessed with it), I had an active social life – but didn’t drink too much. I detested going to the doctors and was very proactive – NOT the profile of someone that would suddenly wake up one day and start to claim ‘movement’ and want to bother the medical profession. Illness, as far as I was concerned was something that happened to others, not me.
| Symptom | Description / Points |
| Sensation of movement and irritation | Particularly at night, areas where movement is felt ceases in direct sunlight. Whatever it is it doesn’t like the sun. I couldn’t get to sleep, or if I managed to sleep would get woken up by movement around my body – I tried getting drunk and then very drunk, taking sleeping tablets etc – but kept getting woken up, several times by my body. How could this be mental if the sensations were waking me up? |
| Lumps and Bumps | Very slight lumps and bumps, particularly where I started to feel lots of movement. Some of the bumps were very sore and I only found when feeling around the area. |
| Thudding / Thumping noise | Not really a noise, but a vibration that turns into a noise. Like the thumping noise you hear when you tap on your head. I suspect this is a stage of the lifecycle hatching and moving around |
| Ear infections – LOTS | Feeling of movement inside the ear with a ‘flicking sensation’ , followed by a sharp piecing – then my inner ear internally bruising, closing up and leaking fluid. Massively painful. |
| Thickening of Skin, outer ear – Upper tragis in particular | Lots of movement around this area, cementing behind and in my upper tragis. Hardened and blacked skin – constant movement around here. |
| Movement – all over | But particularly perineal area, behind and in the ear, back Upper. Bridge of nose, in the nose. |
| Flicking of hair | Literally, I could feel individual hairs on my head being ‘flicked’, it was bizarre. I think they somehow get into the roots |
| Insect ‘shrilling’ sounds | One ear in particular is affected, occasionally I would hear a shrilling insect sound, like a cricket – I’m guessing it was so near to my ear drum I was picking up noises I wouldn’t otherwise hear. If I put my finger over the affected area it would cease. I can’t tell you the horror of realising an insect is living off you and having a party. |
| Objects – LOTS | Using an oil mix and lots of rubbing, dislodging many many objects – which in isolation ‘look like they could be anything’ – but when you are looking at a series of them clearly are ‘something’ and certainly, shouldn’t be something that you are removing out of your skin. |
| Permethrin | Used this cream, covered head to toe – for 3 days. Movement stopped (Hooray!!).. but then started up not long after I stopped using the cream. Its part effective, but I suspect they are buried under the skin enough for it to not penetrate areas effectively enough. |
| Many more | …. I will add as I go along, its early days on the life of this blog |
…. All of the above point me in the direction of some kind of Mite/Parasite, this is something I derived and the evidence/my experience kept bringing me back to.
Unfortunately a lot of the experiences were classed as subjective so became a ‘discussion’ on my experience Vs what they thought it could be. In isolation you could argue against an individual point – but taken collectively, I thought it was compelling – it appears not.
This is supremely Annoying and frustrating – can you imagine someone in a lot of pain and someone walking over and saying ‘You think you are in pain, but you are not’ – the arrogance.
So, in summary, I looked to see introspectively if this could be mental – but logically I just couldn’t reconcile it.
- It was waking the unconscious me up
- The movement in areas ceased when exposed to direct sunshine
- I felt movement in my ears, < 12 hours after there was a MASSIVE ear infections – i.e. physical manifestations. I counted around 10 in 7 months.
- I could hear different sounds and sensations – not just one
- My ear was thickening and hardening in areas I was feeling movement
- I was getting slight lumps and bumps around areas where I started feeling new movement
- Recently I have been getting very obvious and painful bumps – these are impossible for doctors to ignore, but I am still being passed on and responsibility is being devolved from one doctor to another
So in short, I was convinced myself it wasn’t mental – but the doctors kept arguing with me, some threw veiled threats at me and said ‘if you don’t go to a phycologist then you are effectively refusing my treatment’. It was an impossibly stupid situation.
My MiteMare 
Leave a comment